Jared Waters - Fighting, Overcoming & Surviving Acute Lymphoblastic Lymphatic Leukemia

The End..by, Christina

2007-11-17T12:48:00.000-08:00

It's been two weeks since we said goodbye.
It is so hard to end this blog. It has helped so much at every turn. More than anything I want everyone reading this to know how much I appreciate you. Your prayers, love and God's grace has been amazing.
Oh I miss Jared. Kyle said it all...there is a Jared sized hole in my heart. He was my everything. My life will never be the same. He was an amazing, unbelievable person. He made me a better, stronger person and helped me to a better life. A life to worship and trust the Lord at every turn.
Jared is being rewarded now and I am so happy for him. He no longer has Leukemia (oh how he has waited for this day!). I know Jared is rejoicing in heaven. I can't wait to see him there and celebrate together his new, healed body.
I love you all more than words could ever begin to express,
Christina
(I know people check the blog and are not posting, come on..last chance!)

Final Post Part 2

2007-11-15T13:47:00.000-08:00

What a journey. Words can't begin to convey the impact these past 18 months have had on me, not only as a sister, but as a believer. I think about later on, how will I ever be able explain to people the loss of my brother Jared, but more importantly the battle he faithfully fought up until November 3rd. But where my memory fails or my words just don't suffice, I will be able to look back on this blog, this timeline, this tool that enabled a way of communication with our family to all of you who have stood in the gap for us; those of you who have continued to keep our arms raised. It seemed with every entry, there were comments of either praise, hopefulness, or encouragement. And eventhough the battle is over, and the blog has served its purpose, your support and words will always remain, and that is absolutely priceless. Jared taught me so much in the past year and half, but it was in his weakest, lowest of lows, where I saw true faith, grace, and strength being walked out, and for that I too, am a very proud sister.

-Jessica

I just wanted to thank everyone again for all the support that you have given to our family. From friends and family to neighbors and doctors and hospital staff, we could not of done it without you. Thank you so very much ! As I have said before, I know there are a lot of things that I will miss seeing Jared do, like become a father and find his way in this world but seeing my son face death, fight an ugly battle against cancer, seeing what the heart and soul and spirit of my son was when it really mattered is more than I could of ever asked for. I am so very proud of him and if I had it to do all over again I would still believe, I would still pray and I would still hope. Love ya much !

-Dianne

Final Post Part 1

2007-11-12T19:40:00.000-08:00

For those of you who did not attend the funeral, this is what the Lord put on my heart to speak and I thought it appropriate for my final post.

I remember asking Justin, my husband, and few weeks ago after we found out that the second transplant did not take, to pray that if I had the chance I would be able to articulate to Jared the things that were hidden in my heart. So I would go and hang out with Jared and the words never came and then Jared went back into the hospital last week and still no words. And in the past few days, just silence.

Yesterday as I was preparing the celebration of Jared’s life, I asked the Lord, that if I was to speak today that He would bring the words up out of my heart. But still nothing. Then yesterday as we had our own private time with Jared and as people began to come in, something began to bubble up out of my spirit and it pushed the tears aside and it came rushing through me..it was pride. An overwhelming sense of pride for my brother, for the fight he fought, the man he became and amazing way He loved the Lord and trusted Him. Growing up I always had a sense that Jared would do something great, I always thought, probably like many of you, it would be in the realm of politics, journalism or firefighting. But it was this fight that brought out the greatness in Jared, he did this amazingly well.

So that is why today, I refuse to stand here defeated, I stand here proud of my brother, that he gave his all to this battle and he did it well. Even in the last days when Jared was struggling so much I knew he would have kept going but the Lord in his graciousness and love for Jared, rescued him out of this battle and Jared victoriously went home.

The enemy will not have any part in this, all the honor is given to Jared for how bravely he stood in the midst of this battle, with his eyes fixed on the Lord. All the glory is given the Lord, the author and perfecter of Jared's life, his redeemer and friend, and the one who stands victorious on his throne now and forever more.

I found this passage in Jared's bible, he had written 5/22/06 next to it, it was only a few days after he had been diagnosed. I will end with this, something that resonated in Jared's spirit and is fitting to end with today.

Psalm 112:6-8

"Surely he will never be shaken; a righteous man will be remembered forever.

He will have no fear of bad news; his heart is steadfast, trusting in the Lord.

His heart is secure, he will have no fear; in the end he will look with triumph on his foes."

A Proud Sister,

Joanna Waters Hildebrand

How do you encapsulate the last 18 months and really the last 29 years in a few sentences? One thing was that as weird as it sounds I wish Jared could have posted his last blog. Then I found by accident a posting he made Aug. 30, 2006 that shows his heart.(please look at it) For many of us we will go different directions so please know the gratefulness of our hearts for standing in the fray with us. Growing up, we always taught our kids that to love the Lord with all that is in you(and your neighbor as yourself) is what everything in life hinges on(Matt. 22:36-40). Anything else, fame, riches, success is a side issue. To see that having transpired in Jared's short life (and my daughters)has fulfilled my hearts desire in this life(though now I look to the next generation). As our paths diverge I would leave that with you as the all in all of this life. Please continue to stand with us for though we don't grieve as those without hope we do grieve. We no longer have a wonderful son in this life to enjoy yet we have gained a precious daughter, Christina(remember her). I better stop.(Icould go on world without end. just ask my kids)We love you much. Terry

Sharing Our Pictures of Jared...

2007-11-12T19:25:00.000-08:00

The Army of the Lord

2007-11-10T06:30:00.000-08:00

2Kings6:17 "And Elisha prayed, and said, Lord, I pray, open his eyes that he may see." Then the Lord opened the eyes of the young man and he saw. And behold , the mountain was full of horses and chariots of fire all around Elisha.
This may seem like an odd request but we know there are many who have kept up with this blog but never posted. So we would like to have our eyes opened to the Army of the Lord that has been encamped around us all these months. So would you mind posting a comment, or your name, or anonymously. I have heard sometimes there is a problem being able to post a comment on the blog. If so you can go to Fort Worth Star-Telegram obituary and the have a guest book that is easy to get on. There was also a really good article on Wed. about Jared that they ran. We are still trying to get together a final post and try to put some other pictures of Jared, Christina, and family on it. Your support and prayer are still being experienced here for which we are grateful. The Waters

2007-11-04T13:18:00.000-08:00

For the past couple of days we have been making arrangements for a time that will honor Jared. We had nothing in place yet the Lord has provided so amazingly again as He has from the beginning. As we were talking about the details, what we really desired is to point to the faithfulness of our Lord to Jared and us all these days as He will all the rest of our days. This is another brief post to let any local people know of the arrangements we have made. The viewing or wake(whatever it is they call it)will be Tue. Nov.6 from 6:00 p.m.-8:00 p.m. The service will be at the same place on Wed. Nov 7 at 1:00 p.m. The burial will be private.
Location is: J.E. Foust & Son
523 Main Street
Grapevine, Tx. 76051
Please continue to pray and stand with us. We do not do it alone. Love, The Waters
Also in a few days we will probably post our last blog.

Your name is Jared

2007-11-03T09:18:00.000-07:00

The name Jared means: to bring down, cast down, put down , run down, sink, subdue, take down. I was able to say to Jared yesterday you have fulfilled your name. He has kept the faith and never wavered. He has fought the good fight. This is the hardest thing of our lives. Today, at 6:22 a.m., Jared went to be with the Lord. It was a peaceful transition for which we so thank the Lord. Christina will post a blog in a day or two but asked me to let everyone know about Jared. You all have been so faithful and we will never take it for granted. So please continue to pray for us as we walk a different path now. Love to all, The Waters

Never the less, revisited

2007-11-02T07:03:00.000-07:00

Jared made it to the Harvest Festival at Grace as you probably figured by some blog posts. I would have said forget it but that is why Jared is where he is. He was able to see Elijah (Tigger) and Aubrey(a pumpkin) and have some cotton candy. He had to be on oxygen at a pretty high flow so logistically it was a challenge but worth every effort. Yesterday we brought him back to Baylor/Dallas because we could not keep his oxygen level up and it was getting a little nerve racking to Jared. Since we have been here his demand continues to go up and his oxygen level in his blood goes down. The reason being the blasts in his blood are 92%. The doctor explained they are very sticky and as they build up in the lungs they prevent a good transfer of oxygen. Jared is continuing the new treatment that started a week ago though the doctor said we should be seeing some effects by now but we are not. Dr P.(Luis) continues to try to pull cards out of his sleeve for which we are grateful and Jared and Christina continue to fight and we continue to back them. RN Ron, the first RN Jared connected with up here was taking vacation days but when he heard Jared was back in he came to work and requested to take care of Jared. It just an example of how these good folks up here view Jared(and Christina). We are walking two roads at the same time (don't ask me how), the Lord is well able to deliver Jared out of his enemy's hand, and that is what it will take, never the less if He does not Jared will not bow down(neither will we). Kyle posted a good song which is our testimony, blessed be the name of the Lord. So, continue to stand and fight since Jared and Christina are and pray for the Lord's presence to be real and palpablefor them. You all are our great encouragement in the Lord. Love, The Waters

Still home!

2007-10-29T15:28:00.000-07:00

Jared did get to come home on Saturday and has had a great time watching all the football and baseball games on TV. It is sooo nice to have him home. However, we are still in a very critical time. When we left the hospital on Sat. his blood counts were very bad (52,000 WBC, and 47% blast). They have pretty much given him about 2 weeks to live. But....we still have lots of hope on this new chemo. Today his numbers looked a little bit better, they way I look at is.. they went in the right direction. He is hallucinating some, requiring quite a bit of oxygen and we had to call 911 twice yesterday because he fell and couldn't get up. Very nice guys at the fire station by our house.
Jareds biggest wish right now is to go to the Fall Festival at the church with Elijah and Aubrey. Please keep this wish in your prayers too.
Love you all bunches!!!
Christina

Not the news we were hoping for

2007-10-26T17:23:00.000-07:00

Leukemia is still in the bone marrow. Jared immediately started a new treatment of chemo and steroids. There is not a lot they can do so Jared will be coming home tomorrow. I am happy to be able to take him home and spend some quality time together. He will be going to the office a lot and oxygen will be set up at our house.
There is not too much to say at this time but we promise to keep you updated.
We love you all even if we have never met you. We appreciate everyone Believing with us at this time. We have faith!
Christina

Jared wanted to say that this battle will be won and we appreciate
you fighting with us!

At the Red Sea(Again!)

2007-10-24T19:13:00.000-07:00

Exodus 14:13-14. Jared has received some unpleasant scenarios this day which we want to make everyone aware of. Not to commiserate about but to focus on in prayer and intercession. Jared's eye has become worse and some of the doctors fear it will not recover and is infected. Being in close proximity to the brain makes this very serious. They have suggested removing that eye. Dr. P.(Luis) wants to do a bone marrow biopsy tomorrow. If he can see any leukemia in the marrow he would say that is it and make Jared comfortable. There would be no purpose in putting him through an operation so that would not happen. That hits like a ton of bricks. The doctor will do the biopsy in the morning. He asked Jared if he would be available. Jared started looking around the room,so Christina said what are you doing. He said he was looking for his calendar to see if he had any plans. That is the thing I always want to see in him, the fire and courage. So here we are. We continue to run at our enemy and we will not be terrorized however we are very sober about the things before us. So please pray:
1.Jared's spirit stay strong and fiery.
2.Grace for Christina
3.Negative results on biopsy.
4.A remarkable positive change in Jared's eye quickly(like the next day or two)
5.Wisdom for doctors. In Chronicles some where it talks about the sons of Issachar "understood the times and knew what to do."
6.No infections
2Cor.4:8-9. "We are hard pressed on every side, yet not crushed, we are perplexed, but not in despair, persecuted, but not forsaken, struck down but not destroyed..."
This is where we stand and we thank you for standing shoulder to shoulder with us.
The Waters

Back Again

2007-10-22T18:08:00.000-07:00

Jared got to come home Saturday evening. But after one miserable day at home he checked back in today. He went in this morning to discover he had a fever, low oxygen and low blood pressure. His white blood cells have shot up 32,000 (which is way too high). They have started antibiotics already and we are waiting for the blood cultures to come back. More than likely he has an infection of some sort. They also think he has an infection in his eye. Jared is pretty confused and disorientated at this time. Dr. P is concerned about Graft vs. Host disease and wants to keep a close eye on Jared. We are praying this is a short hospital stay. Please continue to keep us in your prayers!
Christina

Day 10

2007-10-20T06:51:00.000-07:00

We have started a new countdown! I am trying to get sent home today because my numbers are looking really good. I need to get an MRI done and get off oxygen first. Please start praying for these two things to go well. My oxygen level has not been very good. Also, I saw a new eye doctor this week who was very nice and wants the MRI to see what is putting pressure on my eye (he thinks it is a mass of leukemia).
Start praying..I want to go home!!!!
Love you
Jared

2007-10-16T11:16:00.000-07:00

People have been asking for an update and it has been on our minds to do, as a matter of fact I started to this morning but did not have the time. In the mean time there have been some things unfolding. Yesterday, Luis did a spinal tap on Jared to see if any thing is going on in the brain with leukemia. It went very well(first attempt with not much discomfort) and he thought from appearance it looked pretty good. Today they got the lab. results on it and they found some blasts in it indicating leukemia activity. It was not what we wanted to hear however all the signs and symptoms have been pointing to that ie; the eye, facial droop, lots of pain in his head. I thought of a scripture but could not find it, that speaks of things hidden in the darkness made manifest in the light, and this thing has been hidden for over a year. That is how long the issue with his eye has been going on in some fashion or other. You can't fight the enemy if you can't see him. So today the doctor was going to do another spinal tap to do a treatment in the spine. We continue to stand and contend for a complete healing and restoration for Jared. See Luke 18:1-8. Also Second Samuel 23:10 speaks of one of David's mighty men who fought against all natural odds until his hand cramped around his sword and the Lord brought a great deliverance. We want to be like that, not in desperation but more focused. So, please pray for:
1. The stem cell transplant to be effective to fight
2. Relief and healing for his eye. Very painful right now
3. A hedge of protection mentally, physically, and spiritually fo Jared and Christina(and us) Our enemy prowls about seeking to kill, steal, and destroy and we are alert to this.
4. Effectiveness of this chemo, NO side effects
Please forgive all the fighting analogies(we are in a war) I watched "Band of Brothers", very powerful. Thanks for love, prayer, and support in so many ways. The Waters

Invade, Take Over & Destroy

2007-10-10T18:33:00.000-07:00

Happy 3rd Birthday Jared!!

At 2:00pm today Jared received my cells and the battle began. During the past week I have been praying that my cells would pour into Jared's body like a flood, seek out any leukemia, kill it and firmly establish itself as his new system, never to be uprooted again! When they were giving Jared my cells I asked him if he could feeling them marching in, because they are on strict orders to fight and win! They were wanting to get about 1 million cells but they ended up with 8 million...more to add to the fight.

Jared was amazing today, he got up and sat with me while they took my cells and took four walks today! What a fighter! After having a few really bad days it was great to see him up and about. He is still having severe eye pain and the doctors are trying to find a good way to manage the pain.

Please join us in praying for the following:

That Jared's system would assimilate into a fighting machine (a quote from Dad)
For very little Graft vs. Host and a lot of Graft vs. Leukemia
Complete healing in his eye and success in a pain management plan

For all of those in the Dallas/Fort Worth Area there will be a Blood and Bone Marrow Registration Drive at

Haltom City Fire Station #1
5525 Broadway
Saturday at 10am - 2pm

To register with the National Bone Marrow Registry it just requires a cotton swab to cheek, its that easy, and just think you could save a life. If you are interested in donating blood for Jared at Carter Blood Care just give them Jared's name and his birthday(8-8-78).

Thank you for you endless prayer and intersession, we are aware of it every minute of the day.

Joanna

New News!

2007-10-09T14:41:00.000-07:00

The transplant is tomorrow (Wed)!!!!!!!!!!!!!!!
Jo is coming in at 7 to give her cells and I should get them in the afternoon. Dr. P (Luis) thought the sooner the better. We will take this.
Please pray extra hard tomorrow that these new healthy cells will go attack the Leukemia. A miracle to about to happen!
Love you!
Jared

Quick Update by Christina

2007-10-07T19:33:00.000-07:00

I just wanted to ask for prayer for Jared with his new strep infection. It showed up in his blood last night, so they started the big gun antibiotics again. He is really tired, nauseous and overall sore. This is been a rough few days.
Also, Jo is really sore and achey from her shots. Please be thinking about her.
Today was suppose to be day 100, so we were pretty bummed out. But we know that it will make the next day 100 even more special. This is considered a 2nd transplant so Thursday will be day 0.
Love you! Christina

Note from Jared

2007-10-06T07:26:00.000-07:00

Well it is official, my counts have bottomed out. I am running a fever so a few cultures have been taken. Some far nothing has showed up, but I feel pretty bad. I am really tired and achey. I have not been sleeping well either. I will keep you posted.
Joanna started her shots today. She will get them for four days and then on the fifth day she will give cells. I should get the cells on Thursday. They will take a couple weeks to kick in. Please pray for this to be speedy and for me to remain infection free in the mean time.
I appreciate you!
Love, Jared

Note from Christina

2007-10-01T17:58:00.000-07:00

I just want to let everyone know how much I love you all! We could not make it without you and your prayers.
I am so sad that the 100 day celebration had to be called off but I know there will be another celebration soon. Jared has had some good improvements the last couple of days. He is awake a lot more and able to visit, which I love! This road is hard to say the least but the victory is going to be huge!
The chemo will be finished around noon tomorrow and he is up for visitors.
I have the best husband and best friend. He has a fight in him that I could have only hoped for. He has to be the one fighting for us both.
If anyone has tried to call me the last few days please know I was not avoiding you. My phone was broken but thanks to a GREAT father-in-law I have a new one now. However, I lost all my phone numbers.
Also, there is something I have been wanting to say for a long time. A lot of you probably already know about him but please pray for Ethan Powell. He is a baby with leukemia whose situation has been very close to Jareds. His website is http://ethanpowell.com/ .
Love to all!
Christina

2007-09-29T14:01:00.000-07:00

.....We just wanted to update you a little. Jared got moved out of ICU and is on the bone marrow floor. He is half done with his chemo....thank you Lord !! He is very weak and sleeps a lot but is able to get some food down everyday and we are trying to get him up in a chair for a while each day. His counts are low....which is what the chemo is suppose to do and he has been getting some blood and platlets. Joanna will start a series of shots next Saturday thru Tuesday. Wednesday, Oct.5 they will harvest cells from her and Jared should get them on Thursday the 6th. ....note-Joanna has had to begin to stop nursing and to switch Aubrey over to formula...last I heard she was doing well with it !!
.....When we met with the doctor on Tuesday he was very honest and said that Jared did not have a lot of choices and none of them were very good. But as you know Jared and Christina chose the aggressive course which is the chemo/cells from Jo. The chances for this to work are not that great...10/20 %. We totally stand with them in their decision and totally EXPECT the Lord to move!
......We would appreciate prayers in these areas...
1--Jared to stay strong-body-mind-spirit
2--Minimal side effects from any of the drugs
3--Joanna/Aubrey to be covered in this transition
4--Lots of grace for Christina (and us) and Jess at school
5--Wisdom for the doctors
6--and peace that passes understanding

Thanks so much !
The Waters

Never the less

2007-09-27T11:06:00.000-07:00

Well we have taken Jared back to Baylor/Dallas to start and aggressive round of some kick butt take names chemo. It will be 6 days of 2 rounds a day followed up 7-10 days later by a stem cell transfusion from Jo or some other immune system fighting cells. This very tough chemo and he really needs mimun side effect with maximum results. He is in transplant icu because his vitals were a little shaky and they want to monitor him closely. He is pretty sedated because they give him a drug in conjunction with the chemo that will protect his brain. His white cells are around 180,000(4-11,000 are normal limits) and the percentage of blasts(leukemia cells) are somewhere between 80-90%. These numbers have gone through the roof in a few days which gives further concern to the doctors. Discouraging, disheartening, bleak, use your own adjectives to describe Jared's condition. Never the less. The band of brothers in Daniel 3 were faced with such cirmumstances and over the past few months I have thought about it. Their statement to the king was that the Lord is well able to deliver us out of your hand but never the less if He does not we will not bow down to your idols. Fear and terror try to assault us but we will not bow down to them. Our eyes will stay fixed on Him(though they may wander),who is a shield and refuge and who delivers with awesome deeds in righteousness.
Please pray:
1. That Jared would know the L0rd's nearness in this fight.
2.Courage and strength for Christina and us as we try to support Jared.
3. Maximum effectiveness and minimal side effect of the chemo.
4.Wisdom from above for the doctors and staff for next few days.
Thank you for continued support from this band of brothers and sisters.

My Hero

2007-09-24T17:45:00.000-07:00

We have received some not so good news today. As indicated by yesterdays post Jared has been experiencing severe headaches and nausea along with other things. He went to the clinic today to run some tests. His blood work came back with elevated white cells, platelets in the toilet, and blasts which indicate leukemia. To say it did not knock the wind out of us would be dishonest yet our hope and confidence is in Him who made heaven and earth. We choose again to run to the battle and not away from it. Which brings me to the title of the post. I have said at different times how good Jared's attitude has been through this ordeal but I cannot really convey how proud I am of him and humbled by the way he has carried himself these past 16 months. Not once has he questioned, why me or be angry about his circumstance. As a matter of fact he was always finding people worse off than himself, showing sympathy for their problems. Not demanding, grateful for what people did for him. Always thankful to the Lord for how He has provided for them in so many marvelous ways. Perfect? No, but always pressing toward the high calling in Christ Jesus.Phil. 3:12. I hope that I can attain to half of his manhood in this life. He is my son and my hero. Sorry about the wordiness but I had to get that off my chest.
So here we are. Tomorrow we get with the doctor(Louis as Jared calls him) and see what the medical options are though he was very honest and said they are limited. We are grateful for these men but our hope transcends them.Ps33:16-19.
So please pray:
1. For wisdom beyond the doctors abilities.
2. Continued courage and strength for Jared and Christina(us too please)
3. No more headaches and nausea
4. Healing from this disease and all it's effects.
Once again thank you to all who check this blog and pray for Jared and us. Words cannot convey our thankfulness. Jared, I love you very much, Dad.

2 weeks to go!

2007-09-23T08:29:00.000-07:00

With 2 weeks remaining we urgently request your prayers. I am not feeling well and experiencing a fair amount of pain. We know that the Lord will deliver us from these side effects. We are continuing to march towards the 100 day mark and know we will make it. The road is not easy. This week started off ok and I had a good time at my reunion. However, the last few days have been really hard. I have severe headaches and double vision that is throwing my equilibrium off and making me nauseous. My doctors and I continue to be worried about why my new bone marrow is not making the cells it should be. A lot of things are going on with my body and I need your prayers.
Thank you, love you all!
Jared and Christina
P.S. I can't wait to see my KC family at Thanksgiving!

Day 78 Update

2007-09-15T08:34:00.000-07:00

Mom took me to the doctor on Thursday and we noticed my red blood was about half of what it needed to be. They gave me a unit of blood and told me to come back in the morning to get 3 more units. When we arrived Friday my blood was even lower as well as my whites and platelets. After my infusions I felt much better. However, the doctors are really concerned. I should be making these cells on my own now. I am going back on Monday and hopefully will be doing a bone marrow biopsy. They really want to take a look at it. My blood pressure and pulse remain a concern as well. I am really needing prayer with all these issues. This has been a frustrating time with no answers from the doctors. I always seem to be a puzzle (one doctor even told me this).
The good news is the infusions helped and I am looking forward to my 10th high school class reunion tonight.
Overall I feel ok but know I still have a long way to go. Please continue to keep me in your thoughts and prayers.
Love you all!
Jared

Day 71

2007-09-08T12:15:00.000-07:00

We got the results back on the echo-cardiogram and all is well!!! My heart looks fine. This is excellent news! However, my pulse is still really high so continue your prayers. Also, my eye is really painful again because we are trying to decrease the steroids.
Thanks again!!!
Jared
Go Chiefs and Cowboys!!!

Quick Update

2007-09-06T15:47:00.001-07:00

I had to go to the doctor earlier this week than expected. My heart rate has been too high so a echo-cardiogram was done and we are awaiting the results. Please pray for this. Some meds have been changed so we are hoping this will solve the problem. My blood work is looking pretty good and I feel good.
Love you!
Jared
Day 69

64 and Counting!

2007-09-01T14:43:00.000-07:00

I am continuing to look forward to the 100 day mark. They say after this I should feel a lot better. My numbers are starting to come back up from this infection. I had VRE show up again in my blood. I am feeling good. All the antibiotics definitely helped. Yesterday my doctor told me my blood work is looking better again and gave us a week off!
My high school reunion is in 2 weeks so lets hope my energy level gets up. I am looking forward to this. Also, Christina and I would love to be able to go to the state fair this year.
I ask for you to continue to pray for my eye, complete healing. Also, for my high blood pressure and pulse. This has taken away some of my stamina.
I have been home for almost one month now and your prayers have helped me get stronger everyday! We love you and appreciate you all lots!
Jared and Christina

...Day 57 !!!!!!

2007-08-25T12:10:00.000-07:00

Thanks to everyone for all the prayers and cards and encouragement !!! We have the best support group ever !!!! Jared has had an OK week..it changes daily !!! He saw the doctor Tuesday and everything was "holding" and said that he would see him in a week...but on Wednesday he started running a temp and had to go back to the clinic on Friday by then his counts were dropping and they did some cultures and ran some other tests...turned out to be a long day...he went back in today and his numbers had dropped even more...so he and Christina are there today getting pumped full of all the good things! The cultures did come back positive for strep...they are not sure "where" it is but they started the antibiotics yesterday and he is getting blood and platelet's.They have wanted to "keep" him but Jared really wants to be home, even though it will be taxing going in everyday this week...but hey who knows by Tuesday it can all change again!!! The doctor did say for all that he has going on today they would expect him to be a lot sicker than he his...but that's Jared !!!
So again we asking you to keep us in your prayers, we know this will be an up/down time until his system kicks in and he gets stronger but that does not make it easier for him or us !!

Please pray for - no more fevers
- counts to get up/stay there
- strep and any other infection to respond to the medication
and for Christina as she greets her 15 second graders on Monday morning !!
My prayer for Jared is that the Lord would set his feet on the road to recovery and he could get about the business of getting stronger and staying healthy !!!

The Waters !!!

Half-way there!!

2007-08-18T08:41:00.000-07:00

Today is day 50! We are half-way to being 100 days out of the transplant, which is a big marker in the process. I am continuing to get stronger everyday and my counts are still holding steady. I am eating well now, thanks to steroids. Life almost seems too normal!
My major source of pain is still my right eye. I continue to need prayers with this.
On Monday Christina goes back to work. We appreciate your prayers as we try to figure out the logistics of this transition.
Love you,
Jared

Steps Forward!!!!

2007-08-11T09:02:00.001-07:00

I went to the Dr. on Thursday and was surprised to find out my white and red blood cells and platelets are all holding steady on their own. This is excellent news! I did not need any transfusions and do not have to go back until Monday. This gives us are first free weekend in long time!
Aubrey came yesterday afternoon and couldn't be more beautiful! We are looking forward to spending time with her, Aunt Marylyn and Grammy this weekend.
I had a great birthday. Your generosity is much appreciated! I love you all so much!
Jared and Christina

No news is good news!

2007-08-07T16:43:00.000-07:00

This has come to be the family motto. This is the eve of my 29th birthday. We have spent all of the last 5 days driving back and forth to the hospital to get antibiotics and blood products. My kind doctor has given me my birthday off and I couldn't be happier. We are hoping this phase of treatment is almost over because we are driving 50 miles a day round trip. My biopsies from last week show I have CMV and Graft-vs-Host disease which has caused me to have to go back on steroids. This makes Christina and I nervous and appreciate all your prayers for protection and coverage over my body. Also, please continue to pray for my eye and stomach issues. I would love to be able to eat again soon!
Baby Aubrey will be born anytime now. So our family is anticipating this joyous occasion! I have my fingers crossed she will be born tomorrow for this is the best birthday gift I could ever ask for.
Thanks for sticking with us. Love you.
Jared and Christina

Surprise, Surprise!!!!

2007-08-02T10:14:00.000-07:00

Huge News! Jared's main oncologist just walked in and said "What are you still doing here???" He is sending us home!!!! He said everything Jared needs can be taken care of in the office. Thank you Lord, we are ready to go! Friday, Saturday and Sunday will be long days in the office getting meds but then hopefully we will only need to come in twice a week after that.
We are excited!!!!
By the way today is day 34 post transplant and the transplant is considered a complete success at day 100. Please pray for us as we approach this landmark on our journey.

Love you! Christina

Home Bound Praying

2007-08-01T11:28:00.000-07:00

We have had many scares this week, including free air in my stomach (which is why I had the stomach surgeries) and my brain is bulging though a hole left by the port in my head.
After numerous tests and procedures this week it looks like things are falling into order. The air turns out not to be there(Praise the Lord!), I have ulcers, and the brain is okay for now, possible a surgery later when stronger. I have a lot of pain in my stomach and still my eye. I saw the eye doctor on Monday and there is nothing we can do, just wait and pray it heals.
The transplant went well and all my numbers are doing great. The oncologist said today we can start aiming at Monday to go home. This is what we are praying for. I am hoping to be able to keep the pain under control at home.
Thanks for all the support!
Jared

I'm All Woman Now!!!!!!

2007-07-27T15:53:00.001-07:00

We just got great news and had to share it! I have 100% female cells, I have Joanna's DNA.
This means there can't be any leukemia cells left. We know you share with us in this great victory!
On a different note, I have developed a staph infection. This has begun to show up in my blood cultures. They have started some big antibiotics. It looks like this is MRSA, which is antibiotic resistant. We will know more on this in a couple days. An infectious disease doctor is coming on board.
We have been in the hospital 5 weeks today and are REALLY ready to go! We know this infection will keep us here longer but please pray for a speedy recovery.
Thank you for all your support. We love you lots!
Jared and Christina

Trending upward

2007-07-25T18:55:00.000-07:00

Talking to a friend today about Jared's progress, I was telling him it is two steps forward and one back but upward. He observed it is like the stock market. Good analogy. Jared's white count today was 5.5. Yesterday it was 6.6 and the day before it was 4.1. That has reflected the movement the last 7-10 days. Going the right direction. Now we need to see the red cells and platelets get in line. The neurological issues have gone away for which we thank the Lord. We will have some good laughs about that little episode at a later date.However his right eye has become swollen again. They had taken him off steroid drops a couple of days ago but will start using them again. The doctor indicated if Jared keeps moving in the right direction by next week being able to go home. That would be awesome. So here is the list for intercession to keep going in that direction.
1. Immune system, blood work to continue to improve.
2. No more fevers. He has been running one for past several days, as high as 103 but yesterday it dropped off and today has been fever free. Nothing has been found in blood cultures but we need to stay vigilant against those kind of attacks.
3.Complete healing of his right eye. We have been chasing this thing since last Oct. in one way or another and nothing has ever come clear to the cause. We have asked that just as He healed the blind that He would heal Jared's eye.
4.Increase in his physical strength. Right now he is real weak. So we pray for power for the weak and increase of strength. Isaiah 40:28-31
Thank you again for intercession and being the cheering section for Jared. I know we continue to stand because of His faithfulness and your support.
The Waters

Standing Up Against More Battles...

2007-07-19T17:41:00.000-07:00

Let's start this post off with a praise - Jared's white cells were up to 3,500 today with 90% of them being the fighter cells he needs. We thank the Lord for the movement of the healthy cells in the right direction and we ask that the engrafting of Jo's marrow continues in this favorable direction.

Now to the issues at hand. Jared is at a big crossroads right now, since last week there has been a drastic shift in Jared's mental health which is causing huge problems for his recovery and possibly for the anti-rejection drugs he is currently taking, which he needs to take. There are multiple things that his oncologist is looking at right now as to what is the root cause of all these mental issues. There are some major decisions to be made tomorrow as to how to go about testing Jared without compromising his body and mental state anymore. We need great clarity and wisdom for this situation.

We are asking for specific prayer for these things:

Protection over Jared's mental health and continued positive movement with the transplant. Also for a rash that Jared has developed which falls under graft vs. host.
For diving wisdom for Dr. Agura (Jared's oncologist), nurses, and any other health professional who comes in contact with Jared's situation.
Supernatural peace and rest for Jared, Christina, Terry and Dianne.
Last but not certainly not least - A breakthrough in healing of magnificent and miraculous proportion for Jared.

Please keep praying and please focus your prayers right now on the issues mentioned above. We are on the watchtower looking and believing for breakthrough in Jared's healing.

Thank you for your support.

The Waters Family

Critical mass/sound barrier

2007-07-13T07:41:00.000-07:00

Well, I am writing this entry again because my foot kicked the power cord disconnecting the cpu.
Definition: Critical mass: what is needed to effect a change. Sound barrier: sudden increase in air resistance before breakling through it. Jared's white cells(Jo's white cells!!!) have been Wed.100, Thurs.200, today 100. He is experiencing a lot of pain with headaches, pain behind eye, severe stomach cramps, nausea, a blood clot behind his knee that they can't treat because of low platelets and other similar maladies. Yet he keeps getting up and walking the halls,which the doctors say he needs to do. His doctor says Jared is a model patient. Anyway we need Jared's white cells and immune system to reach critical mass to push him through these barriers of resistance in his body. He reminds me of the old test planes they used when trying to break through the sound barrier initially. They would appear to be coming apart at the seams right before they broke through to the other side. So please pray for:
1. Blood clot behind knee. Serious problem.
2. Healing for his eyes whatever that is.(They are doing an mri today)
3.Clearing up of stomach cramps.
4. For his immune system to fully emerge and run to all the battles going on in his body. The doctors say when this happens they expect all these issues to be resolved.
5. Strength and courage for Jared and Christina to keep fighting. (See 2Cor.4:16-18.)
Thanks again for continued support and for encouraging words on blog. (Prov.12:25)
The Waters
P.S. Christina asked me to update everyone on pathology of whatever it was they took out of his eyes during the operation. There were no leukemia cells found(thank you Lord), "it's not a toomah!!!", it is not infection or bacteria though they continue to run cultures on it. So things have been ruled out but we pray for healing and restoration to normal function of his eye.

Run to the battle

2007-07-08T15:39:00.000-07:00

Jared has had a rough week. Problems with his eyes, nausea, mouth sores, and just overall funk from everything being at the bottom. His white count is at zero. The doctors say things need to start turning around now. Sometimes when you are right in the face of the enemy you want to run and grasp at hope. Dianne read in the Word this morning that when David met Goliath he ran towards him. That is what we choose to do. Run to the battle. That is what Jared and Christina are doing. They are planning on walking out of the hospital on Friday, the three week mark that was set as a target date. Jared is still pushing himself to walk the halls. Amazing. I would have folded long ago. So here is the list:
1.Bone marrow transplant begins to take with little rejection issues.(Our understanding is a little rejection is good for recovery from All)
2.Remedy and healing for his eyes.(Once again something these doctors had not seen before. Way to go Jared!)
3. Protection from infection. This is very important.
4. Spiritual and mental stamina for Jared and Christina.(and us too)
5. Wisdom and insight for each healthcare worker caring for Jared.
Thanks to you all who keep up with this blog and intercede in prayer. We do not take it for granted. We will keep you posted.
The Waters

Friday Update !!

2007-07-06T16:11:00.000-07:00

...Jared went to surgery yesterday afternoon for his eyes...yes, you read that right !!! The eye doctor here did not think this condition would go away on it's own so they went in and removed some of the irritated tissue in each eye and we are waiting for the pathology report. He is having a lot of discomfort from the surgery and they are doing what they can until the report comes back. We would really appreciate your prayers that everything comes back good and that he would have a speedy recovery from this. He got 2 bags of blood today, got out and walked and is eating some. Joanna saw her doctor today and she is doing well, her iron level needs to get up in time for delivery...along with her energy level !!!! We appreciate your prayers and support !!!!

The Waters !!!

Happy 4th of July !!

2007-07-04T10:44:00.001-07:00

....How did we get to July so fast??? It is VERY WET in Texas so I don't know if we will see fireworks or not ! A couple of updates...Joanna's headaches just kept coming so the doctor had her come in to the ER last night and they they did a procedure where they took some of her blood and injected it back into her spine where they thought there was a leak from the first spinal the other day and she got some fluids while she was there. Her headaches are better but she is a little sore"again"....needless to say we think she is an amazing woman. The Hildebrand's have been staying with us and we are loving our time with Elijah !!! Now on to Jared...he is feeling some what "beat up" as he says...still getting some walking in and eating. His bad eye has flared up and that is an understatement...they have called an eye doctor in and he has had a cat scan and MRI and we are really asking for prayer for this because any new problem at this point would not be good. His doctor yesterday said that they didn't have any news for us yet good/bad..probably in a week they will know more how the transplant is going. Except for the eye issue he is experiencing pretty much the normal...as yucky as that is. Hope to know more on the eye later today or tomorrow....thank you for the support !!

The Waters

2007-07-02T12:57:00.000-07:00

...Just wanted to give a little update...the weekend was a little ruff for Jared, just a lot of things going on but nothing that was not expected. This week we should see those new cells kicking in ! He is tired and they are adjusting drugs and he did get platelets yesterday. He is trying to keep up on his exercising and is eating pretty good. We are just in a "wait and see" time. Joanna and Aubrey are coming along, Aubrey has been very active !! Jo is having some headaches and just general tiredness(she is 8 months along) she will see her doctor later this week. We are asking for your continued prayer support 1) that Jo will get stronger 2) for Jared to stay clear of infections and anything else that would hinder his getting through this. To say that we are tired would be an understatement so we will add strength and energy to that list !!!
Thanks again for standing with us !!

The Waters

...WHAT A WONDERFUL DAY !!!!!

2007-06-29T15:05:00.000-07:00

.....Sorry for the late update but it has been a long, wonderful day !! It started at 4am for some of us !! Joanna went in about 5:30 and they got a little bit of a late start but everything went great with her and Aubrey !! She was actually "glowing" and had a smile on her face when we met up with her in recovery. They were able to do their first ever pregnant donor harvest with great care and concern and speed ! Dr.P walked out of the surgery with his cooler with Jo's bone marrow inside and said they were able to get all they needed and that Jo did great ! She was able to be dismissed around 1pm and we put her in a wheelchair and headed to Jared's room where they had just hung the bag of bone marrow ! It was a awesome moment for all of us !! This has been a long day coming and it makes you very thankful for the people who do all this medical research !!! Jared's day has not been so great, he is just feeling funky but he did get up and get a walk in today ! We will have more details later but just wanted to let you know we are rejoicing at the Water's today !!! The Fort Worth Start-Telegram will be running an article on Jo/Jared and registering to be a donor on Saturday for those of you who are local.
Thanks again and again for all the prayers and support !!!

The Water's Family

T-Minus 24 hours to Transplant...

2007-06-28T10:19:00.000-07:00

The whole Waters family is gearing up for the big day tomorrow, it is hard to believe that we are in this place, but we are so aware of the peace and covering of the Lord on us during this time. There are a too many prayer request to list but we know that the Lord is aware of every detail and how everything is to work. Please just continue to pray over this significant event and that the Lord will give wisdom, insight and direction to all doctors, nurses, staff and family involved in this transplant and in the days and weeks to come.

To learn about the specifics of a Bone Marrow Transplant please go to the following link:
www.bhcs.com/healthinformation/1/003009.htm

Jared is up for visitors but we are asking anyone who may want to come up that you air on the side of caution and if you have had or have been around anyone who has had a runny nose, cough or any sickness recently, please choose not to visit Jared at this time. He is HIGHLY susceptible to ANYTHING for the next while.

More updates to come tomorrow!

All our love and appreciation,
The Waters Family

FINAL Round Begins!!!

2007-06-24T06:45:00.000-07:00

We are currently on day two of chemo. So far everything is going well. Tuesday is the last day of chemo. On Friday Joanna will check in real early to begin her procedure. Jared will receive the transplant Friday afternoon.
We are glad to have Jessica back on Texas soil. She was gone to Italy for too long!
We are looking forward to having Aunt Marylyn here this week for extra support.
Terry (dad) has asked for everyone to remain optimistic but vigilant in prayer for this transplant. We believe this is last step in our long process but we want to remain focused on the Lord throughout.
We are working to endure our last long visit in the hospital. It can make for long days around here. Please know visitors are welcome at this time. We are in room 433, that is in the fourth floor of the Collins building.
Thank you for all your continued prayers and support!
Jared and Christina

Transplant Here We Come!!!

2007-06-19T14:58:00.000-07:00

We finally got the official word! Jared and Joanna will get their blood work done on Thursday and then Jared will check in on Friday. Jared will start with a week of chemo and then next week Joanna will give her cells. Then we wait for the new, healthy cells to kick in. If all goes perfect this whole process will only take three weeks. However, we know we may be in the hospital longer.
Please be in prayer with us as we start this process. We are hoping this is the last step for Jared's complete healing. Love you all lots!
Christina

....Home Again !!!

2007-06-16T21:48:00.000-07:00

...Jared got to come home on Thursday and except for the fall he took on Friday in the shower hitting his head that sent him back to hospital to get checked out he is doing pretty well !!! There is never a dull moment around here !! He and Christina came down tonight for dinner !! They have a doctor appointment on Monday and we are STILL waiting for the Official go for Joanna. So we hope that this week brings us good news all around !! We would still appreciate your prayers for Jared to get stronger and stay well and for Joanna/Aubrey as they go in.
Once again we can't thank you enough for hanging with us !!

The Waters !!

...A Good Report !!!!

2007-06-12T19:45:00.000-07:00

.....It's 10:00 pm and we just got in from the hospital. Jared went to surgery about 3 this afternoon...we are glad to report that all went well...so well that he called Christina from the recovery room to order his dinner....nachos and when we left he was sitting up in bed, had walked to the bathroom, was more than fully aware of his surroundings and was having dinner !We are very thankful to the Lord for seeing Jared through yet one more hurdle ! He should be in for a couple more days then home to rest up for the transplant !!!!!! Thanks again for all the prayers !!

The Waters

....3rd Qucik Update !!!

2007-06-11T19:47:00.000-07:00

....Jared is going to surgery tomorrow , Tuesday...they are going to remove his head port...once and for all ! They think it is the source of some of his problems and they wanted it out before the transplant. He is having surgery late in the day so we will update you when we know something. He is not feeling all that great but the test have all come back ok so they think maybe it could be a viral infection that he just has to work out. If all goes well with the surgery then he should be able to go home by the end of the week. They will wait a couple weeks to make sure all went well with the surgery before they start the transplant. We are waiting on the "official" word from the insurance to get Joanna in..we hope by next week at the latest. Thanks again for hanging with us through all of this !!!

The Waters !!

...2nd Quick Update !!!

2007-06-11T19:46:00.000-07:00

...QUICK UPDATE.....

2007-06-08T09:37:00.001-07:00

Just wanted to let all you faithful people know that the school board approved the bone marrow transplant !!! We are very thankful for that to say the least !!! A BIG thank you to all the people at the school district who helped push this through....thank you for taking the time to think about Jared and Christina !!!
.....now the not so good news....Jared had to go back into the hospital on Thursday, he was having chest pains and some severe headaches...they are running test.
.....PLEASE pray for NO complications for Jared that would delay the transplant and for Joanna and Aubrey as they get ready for their part !!! And let's add in wisdom for the Baylor team as they have not ever harvested from a pregnant woman but seemed to have covered all their bases and are ready to go !! .....the Waters never do anything the easy way !!!
....Thanks again for ALL the support and we will have more details in the days ahead !!

Dianne

Update

2007-06-03T08:57:00.000-07:00

I have been home for one week tomorrow! On Monday night I fell and had a seizure at home. However, aside from scaring Christina I was ok. This week I have been feeling pretty sick, fever, achy, stomach pains, and tremors. I went to see Dr. P on Tuesday and Thursday (which takes a lot out of me). The good news is my blood work looks good and I don't have to see him this week until Thursday.
Christina's school board is meeting on Thursday and they will discuss waiving the preexisting condition. Therefore, the transplant could get going soon.
We want to thank everyone from KC for EVERYTHING done for us at the golf tournament. We know how lucky we are to have such a wonderful family and group of friends!
Please continue to pray for us. Love you all so much!
Jared

HOME AGAIN....YEAH !!!!!!!!

2007-05-28T16:37:00.000-07:00

Jared got to come home today !!!! His levels are rapidly moving up and he came through this round of chemo faster and better than any of us had anticipated......thank you Lord !! He will go back to the clinic tomorrow and meet with his doctor and we should know more then what to expect. We are very thankful to the Baylor Team, they took good care of all of us !! Joanna had her blood test ran again last week at Baylor, they want to double check everything. We should know this week sometime how that all looks. It has been a whirlwind 2 weeks over in the BIG-D and I think we are all ready for a little rest. Some really good news is that the HR person from Christina's school district is going to go before the school board on June 7 and request that they wave the pre-existing on Jared which would open the door to start the paper work on the bone marrow transplant and possibly get Joanna in before July to harvest her cells. This would be HUGE !! The doctor is still trying to find the best solution to this challenge. They are not wanting to compromise Joanna or Aubrey and not knowing how long Jared will gain from this round of chemo, the debate is when to bring Joanna in, before or after delivery and when the Insurance will kick in. If this all sounds confusing-welcome to our world !!!
So that would be our prayer request for this week 1) favor with the school board- 2) wisdom for the doctors - 3) that Jared will remain healthy and enjoy being home for a while !
Thanks again for all the support ! You all have hung with us for over a year and we could not of done it without you !
Love ya all !! The Waters !!

Still at Baylor

2007-05-23T18:59:00.000-07:00

Jared is 8 days out of chemo and all his blood work is in the toilet as usual though once again he fared really well through this last treatment. He has been getting blood and platelet transfusions intermittently and they are constantly watching for infection of which he has a couple of strep strains. The doctor did not appear real concerned but they did begin a regimen of antibiotics. Dr. P. as we have come to call him is great. He is really looking long and hard at what is the best and safest way to do the bone marrow transplant for Jared, Joanna, and Aubrey Grace(the baby). At this point we are proceeding towards harvesting the bone marrow as soon as possible to keep from getting too close to the delivery date. Christina will be out of school in 2 days which will be a big relief to her even though she has enjoyed her class this year it will take some pressure off. She is a peach! Here is your laundry list of prayer.
1. Protection from infection
2. Renewed strength(this is considered as they screen him for a transplant)
3. Wisdom even beyond the doctors ability as they consider all these matters
4. Favor with doctors, nurses, insurance, etc. etc. etc....(they have experienced so much in past year)
Gratefully, theWaters

Little fish big pond

2007-05-17T20:17:00.000-07:00

Jared has been in Baylor Dallas one week. He finished the mother of all chemos and really came through it pretty unscathed. For this we thank the Lord. Being at this hospital in Dallas is like being in another state but once again the people here are good and caring people which we are grateful for. Jared had seen somewhere that there are 14,000 employees at this facility. Quite a bit different from HEB which probably did not have 1400 people including patients. Things are still being hashed out with the insurance and we have a great lady at Baylor who is helping us through the process. Right now it looks like the first of July before the transplant will happen. So we are trying to get all our ducks in a row. Please pray for the following;
1. A quick rebound for Jared from this chemo so he can go home for a while
2. Things to line up for the bone marrow transplant
3. Continued favor for Jared with the various people and agencies that he encounters. We have really been blessed so far.
4. Continued strength and grace for Jared and Christina to not just be survivors but glorious overcomers by His grace.
Love you all much!! The Waters

A tale of two cities

2007-05-11T07:44:00.000-07:00

Life has taken the fast track this week for Jared. He went to the doctor on Wed. and his blood levels were starting to shift which indicated the need for another round of chemo. Dr. Davis consulted with the doctor at Baylor Dallas where the bone marrow transplant would take place. They concluded that it would be in Jareds best interest to fast track the transplant. So we went there yesterday and they admitted him for a round of chemo.(5 days) While there they will also begin screening process for him and also reconfirm that Joanna is a match. There are some issue with insurance that need to be resolved so we would ask for your intercession for this. If the insurance would not ok procedure we would have to come up with a measly 250,000$. But we anticipate our Lord's provision once again as He has been so amazingly faithful through this journey. Jared and I talked about that sometimes in looking and anticipating what is down the road you look back at where you have been. One thing is for sure, "the Lord is my rock and there is no unrighteousness in Him." Ps. 92:15. So here is a laundry list of things to intercede for.
1. Continuing strength for Jared
2. Resolving insurance issues
3. Wisdom for doctors(they are always scratching their heads?)
4. Keeping leukemia in check while moving towards transplant
Continued thanks for all your concerns, prayers, thoughts, encouragement,etc... We could not do it without you. The Waters

Best Birthday Ever!

2007-05-03T15:08:00.000-07:00

I decided that I would finally write on here!!! Thank you all so much for all the birthday messages/cards/deliveries!!!! I have never felt so loved! I have been truely overwhelmed with EVERYONE'S generousity and support during this time.
Having Jared home is better than I remembered. Its amazing what four months mostly apart does for you. I love him more now than ever! Also, I better take the chance to let everyone know what an awesome family I have. My mom has been here supporting me for months now and I could not have made it without her. Terry and Dianne are always there for me and unbelivable in-laws!!!

Love you all!
Christina

I'm Home!

2007-05-01T16:38:00.000-07:00

Hi everyone after 101 consecutive nights and 117 total days this year we have finally made it home, thanks be to God! I jad my first shower in nearly 4 months this afternoon and it was wonderful. Thank you for all yoor thoughts, donations, prayers and support we could not have made it without them, and we ask for your continued support as our battle changes its focus to a bone marrow transplant. Also we ask that you pray for my continued increase in strength and ability to get around the house. Tommorrow is Christina's 26tn birthday so be thinking about the best wife in the world, I love you all so much and i'm sorry if i scared you all just a little bit.

Love,
Jared

...we don't make this stuff up.....

2007-04-23T18:29:00.000-07:00

....Well, after much work, from lots of people...Jared got the okay for moving to the rehab unit ! That was on Friday and unfortunately by Saturday morning he had gotten sick enough that they had to move him back to the oncology floor. After running tests they figured out that he had...chemical meningitis...so he is being treated for that and he is feeling better already. He is able to keep up with his physical therapy but not to the extent that he would be doing in the rehab unit but something is better than nothing !! Sunday he was able to get from the bed to his wheel chair without help and was outside for a good period of time !!!!!! And today, Monday he was able to walk again in the hall with help and go outside again and see Molly...their dog! While it feels like we are going backwards we still keep pressing on !! We are hopeful that he can make it back to the rehab unit soon !! Jared's spirits have been better this last week than we have seen them in a while !!!!!
....Thanks to all the Texas State kids who did a great job of putting on an art auction and coffee house concert to benefit Jared and Christina. In light of all that had happened last week on college campuses it was a blessing to see these kids come together and give of their time and energy for someone they don't know!!!
....Thanks also to the staff at McKamy Elementary for round two of the garage sale...you guys
are the best !
....Our focus now is to get Jared strong...get him home for a little bit...meet with Baylor Hospital...and get going on the transplant!!! All in record time!! We hope that this is what the Lord has in mind too ! We know that the Lord will continue to lead and open doors for us.
.... and of course we ask that you continue to stand in prayer with us for strength and for the Lord to guide our every step !

Dianne

....We're Still Here.....!!!

2007-04-16T18:54:00.000-07:00

.....Jared is still on the Oncology floor and that's good news ! He has had two treatments in his head port and they have gone well and he is working HARD everyday to regain his strength ! He is walking with help with the walker and can get himself around in the wheel chair pretty good ! His levels have been low so he has had to stay on the floor and not go outside but that should change any day now! He is anxious to "get going" and it is a slow process getting his strength back. We are hoping that he will be able to get into a rehab center very soon and that would really get him where he needs to be, if not then "we" will become the rehab center, one way or another we will get this done!!!
.....We want to thank all the staff from McKamy Elementary in Carrollton that put on a very successful garage sale Saturday in the "cold". They are going to give it another shot this Saturday, April 21 for any of the "locals" who are interested! The staff at school has been very supportive of Jared and Christina and we are thankful and blessed for all that they do for them.
......Terry and I are heading to San Marcos this weekend to see Jess and also to be a part of a fund raiser that some of the good folks from Texas State are putting on for Jared and Christina. They are having a concert and a art auction...more details later.
......Our prayer needs this week are for 1. Jared to continue to gain strength/quickly
2. For the rehab to work out
3. To find favor with Baylor Dallas where the transplant
could take place.
......Thanks again for all the prayers/cards/messages!

Dianne

Out of ICU again

2007-04-10T15:57:00.000-07:00

Jared is out of ICU and back in oncology again. The short term goal (other than stay out of ICU) is to get walking. Physical therapy is working him everyday and today he took a few steps. Hopefully by next week we will see some good progress. The spirit is willing but the flesh is weak. So pray for renewed physical strength for him. We are moving toward getting a bone marrow transplant and not sure what all that will look like but one thing is certain the stronger physically he is the better. There is not a lot to say right now but we want to keep you updated so you can continue to pray intelligently. It has been an odd time and very wearing on Jared and us also though to a much lesser degree. We read an interesting passage in Isaiah50:10 "Who walks in the darkness and has no light? Let him trust in the name of the Lord and rely upon his God." We have felt like that in the past weeks but we know He hears our sighs and counts our tears. We are thankful for that as we are also very thankful for your continued prayers and support. They are not in vain. Also if you think about it, pray for a neighbor named Pat, who is having some very serious but undiagnosed lung problems. Thanks. The Waters

....Thursday report.....

2007-04-05T10:11:00.000-07:00

...well let's see, since the last update...on Monday Jared had a reaction to the chemo treatment, he was on day 3 of 5...they stopped the treatment and he ended up back in ICU where he still is today. He just got really sick and started running a temp and his blood pressure was dropping but he is stable now and eating some and resting a lot ! Someone said that we put a whole new meaning to highs and lows !! Our prayer concerns now are for 1. the doctors to have a really good plan ! 2. for Jared to not lose ground in getting stronger 3. they are going to do a chemo treatment today in his new head port and we would like that to go really well 4. for whatever needs to happen for him to get the bone marrow transplant would all come into place....that's all!!
Actually that's the short list !! We are walking this out day by day and sometimes hour by hour ! We continue to believe and hope that "somehow" the Lord will work this all out and Jared will come through...after all His eye IS on the sparrow......amen ! Thanks again for ALL the support !

Dianne

What a week !!!!

2007-04-01T18:08:00.000-07:00

The good news !!....Jared has accomplished a lot this week !! The detox process seems to be going better...he walked with the walker twice this week in his room....he has been outside a lot...his appetite is good....he was able to get into the wheel chair and get himself around really well !!!..he even visited ICU which was a huge step....he had surgery on Friday to replace his head port and that went well and he started another five day chemo treatment on Saturday !!! Monday they may start chemo in the head port and he said his goal for this week is to be walking with the walker in the hall !!!! We could not ask for more from him !!
The bad news is that he had a seizure today. Just out of the blue. We will be talking to his Doctor in the morning and will know more then...that is probably the BIG prayer request for now.
We cannot lie, we are weary. Seems like the same old two steps up and one back! Your prayers make all the difference for us we are sure so keep them coming. And we hope to have more good news as the week goes on !!!!!!
Dianne

One Day at a Time...

2007-03-28T17:06:00.000-07:00

We first want to apologize for the delay in this post but we are sure you are just as busy as we are. Jared is each day making progress in rebuilding his strength, we couldn't have imagined how difficult and tedious the rebuilding process would be. But Jared is determined and that makes all the difference. All of his levels are looking great and he should start the next round of chemo in the following days.

We would like for you to pray specifically for a battle Jared is in currently. The doctors currently have Jared on a detox from the pain medicines he has been taking. His body is physically addicted to these drugs and Jared needs to break this addiction. This is very, very difficult (we stress, very difficult) and causes Jared to have anxiety and panic attacks among other things. Please pray that in the next few days Jared would begin to see a breakthrough in this time of detox and also that the Lord will comfort and put great peace on him during this time. This detox is very instrumental in Jared's moving forward and his body being as healthy as possible for what lies ahead.

Thank you for your patience and understanding. And as always we are overwhelmed by your prayer support for Jared.

Coming out of the fog

2007-03-21T11:14:00.000-07:00

Sorry that it has been a few days since the last blog but we were vacationing in the Carribean. Just kidding. Time gets away from though in some regards it seems to move slowly. Jared has been over a week out of ICU and he is a little clearer and stronger each day. His goal for the end of the week was to stand on his feet however he did that on Mon. afternoon so Dr. Davis asked him what he would do on Friday? The reality of his present state has been coming clear the past few days and has been overwhelming to him to say the least so please pray for strength and courage in his inner man as well as the body. He does not see how far he has come since a month ago but we see daily improvement. We were talking about that this morning. As I was trying to encourage him two different staff people came in and remarked at how good he looked and how well he appeared to be doing. A timely word from the Lord (Prov. 25:11). The chemo. and radiation appear to be keeping things in check. The goal now is to rebuild Jared's strength for a bone marrow transplant. Dr. Davis has been talking with Baylor-Dallas about Jared which would be great especially logistically but we will do whatever. Let me brag on Christina for a second. She is the most amazing young lady. Over these past months she has met all the challenges and obstacles head on, not flinching but going right at it. I don't know that many young women her age could do it. We thank the Lord everyday for her and for the gift she is to Jared an us.(Prov.18:22) Thanks for all the love and support.

...A Step In The Right Direction !!

2007-03-15T09:18:00.000-07:00

...Jared left ICU on Monday afternoon......YEAH !!! He is back on the Oncology floor and making progress everyday !! The chest tube is out, he is now eating on his own(nachos yesterday) and his days are full of activities ! He is doing physical therapy a couple times a day, getting up in the chair, breathing treatments, and going for radiation treatments and crossword puzzles and......March Madness !!!! His levels are looking OK and the main thing now is to get him up walking and getting stronger !! We are still asking for no visitors at this time, Jared is just dealing with a lot and getting back up on his feet quickly is very important. We don't have any information on the bone morrow transplant at this time but we know it is right around the corner and he needs to be in the best shape possible for that !! Christina has been on spring break this week so that was good timing ! We continue to stay focused and believe God to move on Jared's behalf. Please continue to pray for his strength to be renewed....and ours too !!

...out of my devotional yesterday.... Lord, you are more reliable than the ground I stand on and your faithfulness is more than I can comprehend. Thank you for hearing my voice and rescuing me when I cry to you. When I am shaken, you steady me. When I am in trouble, you save me. Amen.

Dianne

A Big Turn Around...

2007-03-11T19:33:00.000-07:00

Jared had a few really bad days on Thursday and Friday but had a big turn around on Saturday, which was a huge miracle(we cannot stress to you enough what a miracle it really was), and he was able to get off the ventilator. Thank you Lord!! He is very, very weak but his breathing is really good and he is resting quite soundly.

Please pray for strength as Jared begins to get up and going this week, even the simplest task like sitting up in a chair, takes a lot out of Jared. Please continue to pray that his levels will normalize and he will gain strength each day. We are not quite sure what this week holds for Jared but we will keep you posted.

E-mails to Jared

2007-03-07T19:48:00.000-08:00

If any one would like to e-mail Jared, you can do it following these steps. The nurse will get them and read them to him. Probably brief greetings and thoughts (nothing to lengthy) would be great.
1. Go to Texas Health Resources web site.
2. Go to online services, open to "send patient e-mail."
3. Send your message to Harris HEB hospital.

...the best part of my day !!!

2007-03-07T17:03:00.000-08:00

Just wanted to give you all a quick update. Jared has been in ICU two weeks today. He started some breathing test yesterday to begin the process to get him off the vent tube and has done well with them. He has been up twice in the "chair" (not the kind we sit in) and it was a little hard for him but he hung in there for about an hour each time. All of his levels remain low...still waiting...infection/fever are the things we want to pray against at this time. Again they want to see his levels come up before they take him completely off the vent. He asked for some DVDs to watch today and they gave the OK for that and he also can have music playing in his room !! He has been taken off some of his sedation medication and that is a good thing but he can also get a little anxious at times. It is a tough road ahead but we are all pressing through. When they asked him if he wanted to get back up in the "chair" again today he wrote"whatever it takes to get out of here"....and seeing that fighting spirit come through... was the best part of my day! Thanks again for all you do for us !
Dianne

......still waiting..........

2007-03-04T09:41:00.000-08:00

...We are still in that forever place of "waiting" !!!! All of Jared's levels, white/red counts and platelets remain low due to the chemo treatments and until they start moving everything is on hold. Getting the vent tube and chest tube out depend on his levels. He is getting blood/platelets off and on. One GOOD thing is that he has not had any fevers. He is awake for small amounts of time through out the day and wanting to write to try and tell us something but his handwriting is not all that great and we are not the best at guessing what he is trying to say ! Again the main thing right now is seeing his levels move up. Due to his low level counts we are asking for no visitors at this time, it is just to big of a risk for him right now. Thanks for understanding !! If you could join with us and pray that Jared could be at rest and peace during this time we would appreciate it. It seems like every time he opens his eyes its a new world and we are constantly reminding him of where he is and what is going on but it is extremely frustrating and frightening to him at times.
...We remain HOPEFUL that any day now we will see things begin to turn around for Jared !!
Thanks for all that you do for us !!
Dianne

"The work is extensive..."

2007-02-28T17:27:00.000-08:00

"The work is extensive and spread out, and we are widely separated from each other along the wall. Wherever you hear the sound of the trumpet, join us there. Our God will fight for us!" Nehemiah 4:19,20

We have blown the trumpet again and the people are rallying around Jared and us in prayer. Grace Community Church and others are fasting and praying this week for a significant blow to "the strong man" that is coming against Jared. The doctor said Jared's bone marrow is not as "vibrant" (that's an understatement) as it was when Jared started chemo 9 months ago and it would take 8-10 days for his blood work to go back to a decent place.

Please join us in intercession that this week there would be a significant rebound there and for the problem with his right eye. Jared needs a great victory from the Lord. As much as we are grateful for the care of the medical profession we need the deliverance only He can bring -
"No king is saved by the size of his army; no warrior escapes by his great strength. A horse is a vain hope for deliverance despite all its great strength it cannot save. But the eyes of the Lord are on those who fear him, on those whose hope is in his unfailing love, to deliver them from death and keep them alive in famine. We wait in hope for the Lord; he is our help and our shield. In him our hearts rejoice, for we trust his holy name. May your unfailing love rest upon us, O Lord, even as we put our hope in you." Psalm 33: 16-22

Thank you once again for the support that is shown Jared and our family in so many ways. We are forever indebted and humbled.

Terry Waters

.....waiting and more waiting....

2007-02-26T09:08:00.000-08:00

........We really are trying to keep the blog current but just about the time we get ready to update something changes. So as of today Jared is still in ICU...last day of a 5 day round of chemo...yesterday his right lung collapsed and they put in a chest tube... all his oxygen numbers looked ok today...he was not able to tolerate his tube feedings so tonight they will try some iv feedings which are not the first choice but will have to do for now...the chemo has dropped his levels which is what they want to happen but he needs to start replacing those cells and bring those levels up...until they get up he will have to have the vent tube in so we are hoping that it will not take long....what the doctor's say is that he is sick...holding his own...but needs to get moving upward...our local church has called for a week of fasting and prayer for Jared in hopes to see some turnaround this week...we feel like he is not losing ground but that is not enough he needs to get going..we can't imagine how tired and wore out he must be as we are beyound our limits....but somehow everyday we all seem to press on through. Christina is back at school this week so she will be stretched with trying to do all on her plate...please continue to pray for her. Please continue to hang with us with your prayers ! Jared is getting great care from all the doctors and nurses and we feel really blessed to have them all on his team!!!
Dianne

Believing for THE Miracle.....

2007-02-22T09:08:00.000-08:00

Jared is at another critical moment and we ask that you specifically pray over these things:

Most importantly we need Jared to be able to rest, have peace, be strengthened and HEALED!!!!!
Due to low blood oxygen levels he has been moved back into the ICU and placed on the ventilator. We hope that this will assist him in getting over the hump.
The leukemia has shown up again in his spinal fluid and bone marrow and he will be undergoing a very strong chemotherapy treatment while in the ICU.
Chemotherapy should continue for 2-3 weeks after which there is a possibility of a bone marrow transplant.

We cannot express how deeply we need your prayers at this time and appreciate your constant support of Jared, Christina and our entire family. We ask that you continue believing in the miracle that Jared will completely healed.

More Steps Forward !!!!

2007-02-17T20:17:00.000-08:00

....Friday night they moved Jared out of ICU and back to the Oncology floor. He was not resting so well there since he had gotten more awake and they thought his lungs were doing well enough to make the move....so far so good !! He has been having a lot of pain behind his "bad" eye since Thursday, medication is helping some. This week he will have several tests run to see what is going on with the leukemia and we hope that they will start the radiation soon(never thought I'd say that). Also the doctor said today that his infection had cleared up and they were taking him off the antibiotics.....yeah !!! No more gowns and gloves for the family !!! Jared is really tired and just detoxing from all the medication. A lot has happened in the last three weeks and he is processing it a little at a time. We are thankful to be over this hurdle and aware that we have some awaiting us but we again are hopeful and looking to the Lord to guide the doctor's through the next week. We so appreciate all the prayers and words of encouragement !
Thanks for hanging with us through this difficult time.
Dianne

A Valentines Day Miracle...

2007-02-15T08:06:00.000-08:00

Yesterday they took Jared off the ventilator and feeding tube and he did awesome! His blood oxygen levels are looking great and he is surprising everyone with how alert he is. This is the miracle we have prayed for and we are praising the Lord for restoring life back to Jared! He will start on soft foods today and they expect everything to continue to go well there. We just couldn't have asked for a better report and we know you will celebrate in this wonderful news with us! Thank you for all your prayers, the Lord has been faithful to answer us!

Please continue to pray for the infection and for the many other steps Jared will be taking on the road to recovery. But what a day and what an amazing God!

2007-02-13T07:21:00.000-08:00

......baby steps......... !!
Just wanted to give a short update to all of you, the days all run together for us ! The last three days Jared has done well and made progress (we think) on his breathing tests. They test him( turning the vent way down-having him breathe mostly on his own) about 4 times a day for about an hour to an hour and a half each time. It wears him out but also strengthens his lungs ! The next few days he needs to continue to make progress doing this as he is running out of time on the vent. We pray that every day he will be stronger and be able to do more ! Also the other big concern right now is the "infection" in his stomach. Jared is on a lot of different medication now which makes him a little sick to his stomach. It gets to feeling like one step forward and two back sometimes but we are hopeful that it will all come together for him and we see his fighting spirit coming through!! It has been about 3 weeks since we have had a conversation with him, Jared is doing a lot of "listening" now...we are anxious to hear his voice again...o for the little things in life...please keep Christina in your prayers as she juggles all that is on her plate right now and thank you all again for all the support you send our way !!
Dianne

Eagerly Awaiting A Miracle...

2007-02-09T18:28:00.000-08:00

This week has not been as promising as we would have hoped; Jared would have one good day then one bad which has really held back the turn around he needs. Early in the week they did a culture of some liquid in one of Jared's drainage tubes and it turns out that he has an infection in his stomach which is resilient to anti-biotic but they are working to beat it. Probably the biggest need right now is for Jared's lungs to be cleared and strengthened. This has to happen in the next few days, and we trusting the Lord to miraculously give Jared the turn around he desperately needs. On a positive note his feedings are going well and he has the met the goal the set for him this week, so praise the Lord for that! Christina started back to school on Thursday so please continue to pray for grace and strength as she juggles the two.

We trust that the Lord will move on Jared's behalf and we know that He sees the urgency of Jared's needs. Please continue to pray for the things mentioned above and especially during the next couple days as we eagerly await the miracle we have asked from the Lord. Thank you for your love and support, may you be blessed for all you are doing.

A Time of Transition...

2007-02-04T17:28:00.000-08:00

We believe that in the next week Jared will be entering a time of transition. They have already begun to feed him small amounts through a tube and he has handled it well, which it a huge praise, but they will continue to do this and up the amount little by little. We pray his body will continue to handle that well. Also they will begin moving Jared off the ventilator and testing what he is able to do on his own, he is currently regulating his own breathing but is still having some assistance from the vent. We are still praying for clear and strong lungs. Jared has begun to wake up more in the past few days and becoming more aware of what is going on. This is very hard and frustrating for him because he is trying to communicate with us by writing and gesturing but he is still foggy and we are not good guessers so this makes for a very unnerving situation for him. Please pray that Jared will be settled and peaceful while he is unable to clearly communicate with us, and that we can catch a clue every now and again.

Jared's care has been impeccable, we can only rant and rave about the nurses, doctors and techs that have taken care of him. The really do treat him like he is one of their own which is very comforting to us since we are only able to see him four times a day for about an hour and a half each visit. Christina will start back teaching a few days this week so please pray for strength and peace as she is away from Jared.

Thank you for your prayers and encouraging comments, they are life to us! Hopefully in the next few days we will have more good news to report but as we are finding out this is a slow and tedious process, so we just wait and trust the Lord in every small step forward Jared makes.

...the cloud has moved and camp has been broken !

2007-02-02T13:38:00.000-08:00

...Last night we all left the hospital for a much needed good nights rest !! Especially Christina !! We should all be so lucky to have a "Christina" going to bat for us, she is a gift from God to Jared and the Waters family ! The news today from the doc's is that they HOPE in a couple days to start the process of getting Jared off the vent tube and also to possibly begin small amounts of feeding through the tube to test out his stomach. These are big steps and they are being very careful in taking their time...we are hopeful. We are asking for prayer for those two "events" and also praying against any kind of infection. They will let the family "untie" his hands and move his arms around which he really likes and Christina gives his legs a work out too! He is still only able to communicate with us with nods and shaking his head and he is semi-awake through out the day and we try not to let him get frustrated in trying to communicate with us when we play the 20 questions game !
...We know that Jared has a long road ahead of him and the Waters family has signed up to see him through and with your prayers we will see this happen! Thanks again for standing with us !
Dianne

Isaiah 40:28..The Lord is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary and his understanding no one can fathom. He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary and young men stumble and fall, but those who hope in the Lord will renew their strength. They will soar on wings like eagles, they will run and not grow weary, they will walk and not be faint.

Hope is ALIVE in the Waters Compound !

2007-01-30T20:31:00.000-08:00

To all of our faithful family and friends......a big thank you for all of the prayers and phone calls and meals and coffee and wonderful words of encouragement you have sent our way. You will never know the difference it has made ! Thank you for standing with us in this HUGE battle for Jared's life. As of today things are stable and moving slowly forward we think. The doctor's tell us it is a slow go with his lung condition and the only real big set back we feel we have had since last Thursday is that Jared pulled his vent tube out a couple days ago.....not a good thing !! They said that would set him back a couple days but if that is any indication of the fight in him, this mom is very encouraged !! The order of business for Jared now is 1. getting his lungs healed/healthy..2. healing of his intestinal track..3. leukemia... a huge task for us but not the Lord !! About 20 times a day we hear" he is critical/serious..he is young/strong..he is stable". So for today our prayer is for his lungs to get strong. We have taken over a corner of the ICU waiting room and we call it the Waters Compound. There are 3 recliners that we guard with our lives !!! We are filled with HOPE that God will see Jared through this !! We have seen him go through a lot in the last 8 months...it is amazing how he has bounced back so many times....this is his biggest challenge yet but we are confident that the Lord will meet him and us. Again, thank you so much for all the prayers. The notes of encouragement that you leave on his blog site mean a lot to us and he will enjoy reading them in the weeks ahead so keep them coming.
When Terry left Jared the other night he whispered in his ear" there is light at the end of the tunnel" and Jared shook his head yes....even in his weakest moment he has made my heart glad. Terry and I are so proud Jared, he has a fight in him that puts us to shame.

HOPE IS ALIVE..WE LOVE ALL OF YOU!
Dianne

A Critical Time...

2007-01-27T06:07:00.000-08:00

Thursday's surgery showed that Jared's body was not healing from the surgery he had a few weeks ago. Many of the things the surgeon did to try and help his body heal properly just weren't working and Jared's immune system wasn't able to kick-in and really heal him from the surgery. They found that he had a lot of bacteria and cleaned him out they best the could, and put drains in this time to help get any fluid out that may accumulate.

Jared's condition is critical at this time. He is still in ICU on a ventilator and they are doing everything they can to help Jared's body kick into gear to do what it needs to do.

Here is the bottom line, Jared has to pull out of this. In order for that to happen his body's immune system and lungs need to start working well.

These are the specific things Jared needs prayer for right now:

No infection and a strong immune system.
Lungs would clear and he would be able to start breathing without the assistance of the ventilator.
His heart rate, blood oxygen and blood pressure would normalize and stay there.

We believe that God will do a miracle in Jared's body and he will be healed completely. The bible says that -

"When the enemy shall come in like a flood, the Spirit of the Lord will lift up a standard against him and put him to flight." Isaiah 59:19

This is the standard we have held since Jared first was diagnosed and God has done miraculous things for Jared. So when we have these situation arise and the enemy looks like he is flooding in, we hold this standard before him and he is put to flight. Jared will take back the ground that the enemy is trying to take from him and he will move further into the places the Lord has for him, and we believe that is complete healing.

Please believe that with us. All was ask is that you stand with us and believe for the Lord's hand to heal Jared's body. So now we wait, and pray and expect to see God do something amazing.

Thank you for your support, it is needed now more than ever. May the Lord bless you and protect you as you stand and fight with us.

Urgent Prayer Needed...

2007-01-25T12:18:00.000-08:00

Jared was moved to ICU this morning due to the fact that they couldn't get a handle on his pain and he was losing ground. After moving to ICU they did a CT scan where it showed he has fluid and air in his abdomen. They are currently doing surgery to see what is leaking and where the problem is. They are going to put him on a ventilator because Jared's breathing has been so labored today.

Please pray for wisdom for the surgeons and doctors involved and also that Jared would have sustained strength to battle through another tough surgery.

All we can ask is please pray, pray, pray!

Another Chance to Experience a Miracle...

2007-01-23T12:15:00.000-08:00

As we last posted Jared was undergoing a spinal tap to see if there was any cancer in the spinal fluid. Dr. Davis said today that there were no leukemic cells in the spinal fluid but taking into consideration all of Jared's other problems he believes that there is Leukemia hiding out somewhere in Jared's brain, therefore they are going to begin treatment starting today. Jared will have radiation treatments everyday for the next couple weeks and a chemo treatment in his spine every two weeks.

This was not what any of us hoped Jared would have to deal with but we are thankful they have found what the problem is and can begin to truly heal Jared. We believe this is another chance for us to see God's miracles performed in Jared's life. We hope for a miracle, we believe for it and we expect to see it happen.

Please pray for divine wisdom for the doctors and nurses who are caring for Jared. Also for supernatural strength and encouragement for Jared and Christina.

"Blessed is he who has regard for the weak; the LORD delivers him in times of trouble. The LORD will protect him and preserve his life; he will bless him in the land and not surrender him to the desire of his foes. The LORD will sustain him on his sickbed and restore him from his bed of illness." Psalm 41:1-3

A Continuing Battle...

2007-01-21T17:54:00.000-08:00

Jared was released from the hospital on Thursday and by Thursday night he was having complications with his right eye--having pressure, double vision and extremely sharp pains which were making him sick. By Saturday afternoon Jared was back in the ER where they ran some preliminary test to see if there was anything they could see. The MRI and CAT scan showed nothing, they then opted to keep Jared for further testing and observation.

There is currently a team of doctors looking at Jared's case and trying to find out what exactly is going on. Tomorrow he will have more test run, one of which will be a spinal tap to make sure there is no cancer in the spinal fluid or brain.

We are believe and are praying that the doctors find out what exactly is going on with Jared and that they will then begin to address the problem and Jared will continue to be healed.

We chose to believe that no matter what, Jared is being healed and we will continue to add more miracles to the list of growing miracles in Jared's life.

Please continue to stand with us in prayer for Jared and Christina. Thank you for your support and prayers, we feel them so abundantly each day.

On the Road to Recovery...

2007-01-11T11:53:00.000-08:00

Sorry it took so long to get this update to you...

Jared was moved from ICU last week and is resting well and recovering on the Oncology floor, his home away from home. He is up taking little walks through out the day and is still on a liquid diet. He is healing well but still has quite a bit to go.

Thank you for your prayers and constant support, please continue.

New Challenges...

2007-01-05T14:21:00.000-08:00

Jared had to go back into the hospital on Tuesday evening because of some complications he was having. He had surgery yesterday on his colon to remove what the doctors called a perforation, which was the cause of a lot of pain and some air in his abdomen. The surgery went well but it will be a very long and painful recovery for Jared, but we are believing for the Lord to move on his behalf. He is currently in ICU where they are able to keep him more comfortable and give him more attentive care.

Please pray for the following:

The healing will be complete and quick
His body will start functioning as it needs to
His pain and discomfort will be minimal
The doctors will have wisdom about how to care for Jared
Christina and the rest of the Waters family will have strength and peace

We appreciate your support and really need your prayers at this time. Thank you for continuing to stand and fight this battle with us.

Newspaper article..

2006-12-16T06:37:00.000-08:00

Here is the link to the article in today's paper about us:

http://www.dfw.com/mld/dfw/news/local/16255682.htm

If this link doesn't work here is the text of the article:

The cancer treatments made Jared Waters feel like a brittle old man. He lost his hair, was in and out of the hospital for six months and could barely take care of himself.
Now in remission, the 28-year-old said he came away from it all with knowledge that is often grasped only in old age -- the unconditional love of his wife, Christina.
"I have the greatest wife in the world," he said. "I got to learn really early in my life that I have a partner who will always be on my side. I learned to have confidence in our relationship in six months."
Jared Waters was diagnosed with leukemia in May, just after he had followed in his father's footsteps and trained to be a firefighter in Weatherford.
For a while things looked grim.
He spent 42 days in the hospital between May and August and underwent numerous chemotherapy treatments.
The Haltom City Fire Department -- for which his father, Terry Waters, is a firefighter -- sponsored a blood drive for him. Ninety-four people donated blood and 78 signed up on the bone marrow list, Terry Waters said.
"We are still just overwhelmed with gratitude," he said. "The community has been so incredible. The drive brought out so many people I didn't know or hadn't seen for years."
Three years into the marriage, Christina Waters was torn between her job as a second-grade teacher and wanting to care for her husband.
Leaving him alone was difficult, and she feared that his condition would worsen when she was away.
"It was really rough," she said. "Just thinking about it makes you want to cry."
On Oct. 21, Jared Waters' condition took a turn for the worse.
He went to the hospital with blurred vision, and the family feared that the leukemia had reached his brain. Tests were inconclusive, and doctors decided to give him chemo through a port in his skull. He had five grand mal seizures, Terry Waters said.
"That weekend was the scariest time of my life," Terry Waters said. "I go out to that kind of stuff all the time, but when it's your son it's a whole different deal."
Jared Waters was in a medically induced coma for five days, a ventilator breathing for him.
The family begged loved ones for their prayers.
"We cannot express to you how much we need your prayers right now and how thankful we are to be receiving them," the family wrote in a blog they created on Jared Waters' progress. "Thank you for your unending support!"
Four days later, he was home, and on Nov. 6 his tests were clear. No more cancer.
"It was hard to realize that only six months earlier this whole thing started," Jared Waters said. "It's amazing how things have really come full circle."
He remains on steroids that make him uncomfortable and seizure medication that prevents him from driving. But just before Thanksgiving, Jared, Christina and her mother took a celebration trip to Las Vegas where he indulged in a little poker.
In February, he plans to return to his love of saving lives. He has enrolled in paramedic school at Brookhaven College, and he can't wait.
As for a Christmas wish, Jared Waters already got what he wanted the most -- his hair.
jaredwaters.blogspot.com

Long overdue update..

2006-12-13T07:09:00.000-08:00

Hey everyone, I am sorry it has been so long since I have updated the blog. First things first, we had a great time in Las Vegas, we left some of our money there, but I am told that is not so uncommon! Thanksgiving was wonderful, we ate very well and were lucky enough to enjoy our turkey day with a Cowboys and Chiefs win and, of course, we got to spend time with our Grammy! The last month has still been difficult for me dealing with the different drugs I have been on. Luckily the steroids have been reduced down and the stomach problems that I had been having seem to be almost totally under control, however, I have been dealing with some pretty severe joint problems. So we could use your continued prayers in that area. Yesterday, Christina and I were in a car accident, a woman pulled out in front of us and we hit her going about 30 mph. I don't think that either of us are hurt, but our car is in pretty bad shape, we ask that you all pray that the process of getting our car fixed would move along smoothly and quickly. There is supposed to be an article in the Fort Worth Star Telegram pretty soon, they interviewed both Christina and I and they have come out and taken our picture together as well. The reporter said that there has been alot of requests for an update of my story. As soon as it comes out I will post it on the blog. I hope that everyone is doing well, we love you all very much, now get out there and get your Christmas shopping done, only 12 days left!

Jared

Hair, Steroids and Viva Las Vegas!

2006-11-18T08:01:00.000-08:00

Well here I am in all my glory with a nearly full head of hair and certainly a full face of it. I told Christina about a month ago that all I wanted for Christmas was hair, and the steroids have answered that request. We were able to get the steroid regement cut down last week and we are hoping to get it cut down again today, so please lift up that prayer request. The side effects are still pretty strong so please keep praying for me in that regard. In happier news we (Christina, I and her mom Mary) are leaving for Las Vegas tommorrow for a short vacation! I am very excited to be going on this trip as some of you might know Christina and I went to Vegas right before I got sick in May and had a great time. Monday will mark six months that I have had leukemia, and we marvel at the progress that has been made since that very scary Saturday in May, and we praise the mighty name of the Lord for all of the miracles that we have witnessed!

We love you all, have a Happy Thanksgiving and Viva Las Vegas!

Post-Election Day Blues.....

2006-11-08T07:33:00.000-08:00

I'm sure everyone is as disappointed as I am by last night's results, so I decided I'd better get on here and try to cheer everyone up. On Monday we recieved the results of my last bone marrow biopsy, which came back completely clean!! This means that every test that they can run on me to find cancer has come back showing that there is none in my body!! We do have a prayer request however, I am still having problems with my eyes and I will remain on a very strong steroid program to address the problem. The nice thing about the steroids is that my hair is growing back exponentially, the downside is pretty bad heartburn and difficulty sleeping. We aren't sure how long we will be on the steroid program, but we just ask that you pray it will be sooner rather than later, but most importantly that my eyes will be healed. We love you all very much, and I promise I will post some pictures of my great new hair!

Love,

Jared
Go Jayhawks!

Thank You Lazer...

2006-11-06T08:11:00.000-08:00

Thank you so much to Lazer to putting together a benefit concert for Jared last Friday! Your generosity and love for Jared is overwhelming. It was by far the most entertaining experience the Waters family has ever had! Also a big thank you to the Moon Bar in Fort Worth and Fishboy for their participation in this event.

To check out Lazer go to - www.lazertheband.com

Everybody Dance for Lazer!

Maintenance Phase...

2006-10-31T11:30:00.000-08:00

Jared will officially move into the maintenance phase of his treatment starting Monday. This consists of in-office and home treatments, this phase will last for two years. The results of the spinal fluid came back clear with no traces of cancer, praise the Lord! Jared had a bone marrow biopsy today and he should get those results next week.

Jared is doing well and gaining strength daily, thank you for your prayers.

We will continue to keep you updated on Jared's progress and pass on any new information.

Thank you for the blessing of your support.

Happy to be Home...

2006-10-28T11:43:00.000-07:00

Jared was released yesterday from the hospital and is currently resting and regaining strength at home. The spinal tap on Thursday went very, very well. The pain was minimal, thank you Lord. He is still waiting on the results of the spinal tap, he should receive that information on Tuesday. His vision has cleared up, praise the Lord, and the pressure is easing. The doctors has not found any conclusive evidence as to why all of this occurred and they cannot find any lingering issues. We are left with a lot of unanswered questions but instead of being defeated by this we choose to believe that God's miraculous hand moved in Jared's life, and that is all the explanation we need. With that being said, they are still monitoring Jared to make sure nothing pops up. His next doctors visit is on Tuesday and we will keep you posted on any news we get.

Thank you so much for your fervent prayers, Jared's healing is a testimony to your faithfulness to intercede on his behalf. We are blessed and humbled by your friendship and love for Jared, Christina and the rest of the Waters family.

Goodbye ICU...

2006-10-26T07:54:00.000-07:00

Jared was moved yesterday from ICU back to the Oncology floor, praise the Lord!He was also ready to be back, and I quote, "Where those women know how to take care of me." As always Jared is his witty self, and we love it!

Today they are going to be running some more tests on him to try and pinpoint what is really going on. He is scheduled to have a spinal tap this afternoon in order to get another sample of spinal fluid to test. Please pray for courage and peace for Jared today. We really don't have a lot of information at this time, but when we do we will let you know.

Please continue to pray for the following:

Doctors would have wisdom and insight into Jared's condition.
Jared would be completely healed, his sight would normalize and the headaches would subside.
Strength, endurance and hope for Jared, Christina and the Waters Family.

Your prayers are what help us stay afloat! We are eternally grateful to all of you.

And He's Off...

2006-10-24T08:27:00.000-07:00

Jared came off of the ventilator yesterday and is breathing well on his own. He is still very out of it from all the drugs they have had him on, but he was able to eat a little yesterday and today had a normal breakfast.

The EEG came back clear yesterday, which is great news but still leaves us without any answers on what caused the seizures in the first place. We are basically in a holding pattern right now, we just have to wait for Jared to get out of the fog of all these drugs and then they can start more tests.

Here are the things we ask prayer for:

All things hidden in Jared's body would be revealed.
Renewed strength,hope and peace for Christina and the rest of Jared's family.
Wisdom and insight for the doctors.

We cannot express to you how much we need your prayers right now and how thankful we are to be receiving them. We will keep you updated as we receive more information.

Thank you for your unending support!

New Battle...

2006-10-22T10:54:00.000-07:00

Jared went into the ER yesterday because he was having serious pain behind his eyes and having double vision. They did a pressure test and a MRI which showed nothing. Jared's oncologist Dr. Turner was with him in the ER and took some spinal fluid to test it for any leukemia in his brain, which consequently is someplace Leukemia hides out. He was then admitted and after some of the tests were run on the spinal fluid it wasn't very conclusive that there was cancer in his brain, but Dr. Turner was very suspicious of Jared's symptoms so they kept him at the hospital. Last evening after they gave Jared a dose of chemo into the port in his head Jared had a series of 5 grand mal seizures.

Jared is currently in ICU hooked up to ventilator but his lungs are clear and sound good and hopefully will be coming off the ventilator soon.

Here is where our new battle comes in, they confirmed today that Jared does have leukemia in his brain and is now on a new treatment schedule which will require 2 treatments a week, which will not be outpatient.

We need you to please continue to pray for Jared that the Lord would heal his body. We are believing that the Lord will once again work miraculously in Jared's body. All of our hope is in the Lord and He is trustworthy, we know He is faithful to Jared and Christina.

Good News

2006-10-12T08:42:00.000-07:00

Well, I finally got to come home after a 16 day stay for my final treatment last wednesday. Since I've been home things have been going well, I've had two doctor visits which both went very well. The most recent visit this past Tuesday gave us our first normal blood test result that we have had, all of my counts are not only good but they are in the normal range, Glory to God! I am feeling very good and don't have to go back to the doctor until the 26th, so it will be nice to get a break. Christina and I are leaving this afternoon for Carlsbad for a quick visit with her family and most importantly for my niece's birthday, I have been looking forward to this trip because it is something we have done every year since we have been together, and going on this trip makes me feel that much closer to having my life back. I really needed all of your prayers and encouragement to get through my final treatment, and I cannot thank you all enough for including me in your daily thoughts and prayers, I am honored that so many people would think that much about me. I want to tell you the Lord heard your prayers, and He gave me overwhelming grace to make it through those 16 long days and nights, and I never felt that I couldn't do it until the morning that I actually got sent home. His love, grace and mercy is sufficient!! Christina and I are blessed with absolutely amazing families, and the best friends we could ever ask for, thank you all for going through this journey with us, we don't know what the next part will hold for us, but we know that with the Lord and all of you on our side we can handle whatever the future holds for us. We love you all with all of our hearts, thank you for everything.

Jared and Christina

He's Home!!!!

2006-10-04T15:32:00.000-07:00

Jared is FINALLY home and I couldn't be happier!
I love you all so much!!!!!
Christina

Day Fourteen...

2006-10-02T15:02:00.000-07:00

Well unfortunately this is Jared's fourteenth day in the hospital, his longest visit yet. He is fighting a serious infection and at times running a very high fever. He is patiently waiting for his white blood cells to increase so they can fight off infection.

So yet again, we are calling all of our prayer warriors! Please pray for the following:

That all of his levels, especially his whites, go up and stay up.
That the fever will go down and stay down.

Thank you for continuing to stand with us in this fight. We hope to report good news in a few days!

Still In...

2006-09-25T19:45:00.000-07:00

Jared is still in the hospital, he is doing pretty well but all of his levels are very low and they are apprehensive about sending him home. Also in the past few days he has been running a temp, at times very high, they are monitoring that very closely. Although Jared is ready to be home and Christina is ready to have him home, they trust the doctors wisdom and are hanging in there till they get the all clear signal.

Please pray that Jared's body would fight off anything they may come to harm him and that his temperature would normalize and stay there. Thank you for your continued pray and support, we are grateful everyday for it.

Almost done..

2006-09-20T09:29:00.000-07:00

Hey everyone I just have two more bags of chemo to go with the last one finishing up tommorrow morning. So far things are okay but in the next two days we will know how the side effects are going to be, so please be praying with us. God is so good, and this will be over soon, but His love and your love will never be forgotten by Christina and I. We love you all so much!

Jared